dyslexic

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Dyslexia - Half Full or Half Empty?

Dyslexia... It's all in how you look at it. It's all in how you look at you. What's your perspective as an adult with dyslexia? Is your glass half full or half empty? Do you see limited or unlimited possibilities for yourself? Are you a victim or a victor? What responsibility might you take in improving your situation and changing your destiny, and how might you, as an adult dyslexic, raise awareness as a voice for change for other adult dyslexics?
The choice is yours... You have more power than you know.
photo of trees in fall, beginning to change

Dyslexia Awareness Month

October has been designated as Dyslexia Awareness Month. Many dyslexia organizations and individuals are rallying together and raising their collective voices to create change for the number of children who struggle with dyslexia/LD in public schools. The momemtum builds. Proclamations are announced. T-shirts are donned, screenings are viewed, visits to elected officials are scheduled. Legislation is drafted, walks are held, and bridges are lit up red. There is a flurry of activity and initiatives surrounding our youngest ones, the 1 in 5. The celebration goes on!

So, What About Us? What about the Adult Dyslexic?

For those of us who live with dyslexia or another LD every day, we truly understand the reality that dyslexic children grow into dyslexic adults. We fully appreciate and can relate to the phrase, "Once a dyslexic, always a dyslexic." Depending on where we are in our individual journeys, we may or may not be OK with the word dyslexia. Some of us don't like the label dyslexic, and prefer the word difference. Some prefer to be referred to as neurodiverse. One individual may view their profile as a gift or advantage, another as a disability. On those days when we feel that our challenges seem to outnumber our strengths, we may wish we had never heard of the word dyslexia. We may want to trade in our troubles vs. embrace them, work with them, or work around them. Dyslexia is personal. Some days really stink for the dyslexic, and on those days for those of us who are also parents of children with dyslexia or other learning and attention issues, we get to live some days twice, through seeing how dyslexia plays out in our kids' daily lives as well.

What It Is and What It Isn't

Dyslexia is not something to be overcome or beaten. Nor is dyslexia something to run away from. We get this. Many of us have spent much of our lives attempting to hide our disability from others, living in shame, feeling less than. We also realize that however frustrating the challenges related to our dyslexia might be, our dyslexia is part of the fabric of who we are as individuals. If we choose to embrace our dyslexic identities, to accept the good, the bad and the ugly of our dyslexia, we stand a better chance to live more successful and happier lives. Dyslexia is not something to sugar coat. Dyslexia is neither a gift nor is it a curse. It is a trait. It is a difference which is neurobiological in origin, and it does have it's advantages in addition to it's disadvantages. And, like it or not, it is a disability in some contexts in daily life, in educational systems, and in the world of work. Dyslexia represents the cards which we are dealt. We can't change the cards we are dealt, just how we choose to play our hand. We have some choice in the matter.

"Comparison Is the Death of Joy" - Mark Twain

Comparing oneself to the newest most famous "dyslexic du Jour" in the media may not be all that healthy for the adult dyslexic who is under or unemployed. If might not be beneficial for the high school kid who barely scraped by and has little direction, or for the college student who has four or more years to go in a system where many continue to be ignorant of or to doubt the existence of dyslexia, or of the potential of the person who has it.
Not all dyslexics will be able to achieve the high levels of success of the latest entrepreneur, Nobel Laureate, or blockbuster movie star, and this is OK. Success and satisfaction will look and feel different for each person. It's important to have a starting point, however, to identify individual strengths and attitudes surrounding dyslexia, to set reasonable goals, and to strive to be the best version of yourself, for yourself.

Not All Dyslexics are Self-Aware

Some dyslexics may never know that they are dyslexic. This unidentified and underserved group may go through life never reaching their full potential. This dyslexic may feel perpetually out of place, out of sync, in life and in work, with a gnawing feeling that something is missing, and somehow he'll never be good enough. The issues arising from unidentified and unsupported adult dyslexia are numerous and may have serious consequences. The dyslexic may feel defeated, have a low self-esteem, and may not have that chance to show what he knows in the workplace or educational setting. Unrecognized and unaddressed difficulties on the job or in school for the adult dyslexic may contribute to a loss of employment, dropping out, financial issues, mental health issues and in a worst-case scenario, substance abuse or a life of crime.

What Dyslexia Looks Like in The Adult

Dyslexia may look like this in the adult:
  • The adult dyslexic 16+ may continue to be a slow reader, and will therefore avoid reading tasks in general, reading for pleasure and may hide their struggles.
  • Handwriting may appear messy with many spelling errors.
  • Organizing ideas in the written form may be difficult. Jobs requiring heavy written communication may be difficult and tiring, requiring much time to complete.
  • Directionality, left right, up and down orientation, sense of time, reading from a clock, remembering passwords, and following multi-step directions may be compromised.
  • Time management may be an issue.
  • Anxiety, stress, and feeling overwhelmed on the job or in school is common.
  • The individual may opt for jobs which are lower paying which do not require a high amount of heavy reading, writing, mathematics abilty, or other tasks they find challenging, although the person is of average or above average intelligence, and might be able to master a more complex job if provided the right support.
Photo of tree with leaves changing, many colors, red, yellow, orange

Fall Is A Season Of Change. Working To Become Our Best Dyslexic Selves.

For those of us who are in touch with our dyslexic identities, it is important that we focus on being our best selves. Success is relative, and it is never too late to re-evaluate and make positive change in our own lives to reach new levels of success we hadn't thought possible. Advocating for yourself and asking for help is important. By serving as role models through speaking up about our own challenges and also the strengths associated with dyslexia, we may inspire others to raise their voices too. That's how movements are started. That's how change begins.
For those of us whose geography permits us to view the changing of the leaves in this season of fall, we are treated to a variety of colors. Fall is a great time to reflect on the past, to evaluate the present and to plan for the future. During this month of October, of Dyslexia Awareness, it might be helpful to take some time to do this for ourselves.
In the coming weeks, we'll discuss some thoughts on how to guide your steps to be your best dyslexic self.

Any questions? Contact us at our Facebook page at https://www.facebook.com/headstrongnation. We're not experts, but we’ll do what we can to point you to resources and to answer any questions that you may have. You may also follow us on Twitter, https://twitter.com/headstrongnatio and on Pinterest.

Headstrong Nation is a movement dedicated to a radical new approach to dyslexia. We empower adult dyslexics to own their dyslexia, understand it, and develop new ways of learning and working based on their individual profiles.

If you'd like to help support us in fulfilling our mission for the adult dyslexic, please consider donating to Headstrong Nation by clicking on the DONATE BUTTON at the top of the page. Thank you! - The Headstrong Nation Team

Headstrong is a California Nonprofit Public Benefit Corporation, and is tax exempt under Section 501(c)(3) of the Internal Revenue Code. Federal Tax ID 47-0925290.

Tracy Johnson is an accomplished speaker, educator, advocate, counselor, and minister who is also dyslexic.

Tracy's story is an inspirational one for me personally. Early in my Journey with Dyslexia as a parent of a struggling child and as an adult with dyscalculia, I came upon a community listing for a screening of the acclaimed HBO documentary film, Journey into Dyslexia, Great Minds Think Differently, directed by Academy Award winning Directors, Susan and Alan Raymond (2011). I attended the screening and the film touched me deeply. There was not a “dry eye” in the place. Susan and Alan Raymond’s excellent directing and interviewing skills drew heartfelt stories from all characters interviewed in the film. Tracy Johnson was one of the individuals interviewed in the film that shared her journey. I’ve since gotten to know Tracy on a personal level and I consider her to be the “Real deal” She’s a passionate woman on a mission to spread the word about dyslexia awareness through giving back to others as a leader in the dyslexic community. Our early individual journeys or those with our children who struggle with dyslexia may be quite painful, and it’s often difficult to see the light at the end of the tunnel.

Tracy speaking at the African American Museum in Phila, PA

Dyslexia: A Civil Rights Issue of Our Time

In the documentary, Tracy shared about growing up as a special education student in the School District of Philadelphia, Pennsylvania. She was raised by a single mom, and her early experiences in public school were very discouraging. She was daily confronted by a system that focused on her limitations so she did not have a true awareness of her innate potential. She was often labeled “slow” by teachers and peers. She endured many painful classroom experiences along with the rest of her special education classmates. One teacher told her group that none of them had the ability to go to college. Tracy had first-hand exposure to the low-expectations that often confront poor and minority pupils who struggle with the basic skills of reading, writing, and math.

Deep inside, Tracy had the sense that she had more to offer, that she could do more and be more. This motivated her to apply to community college, where she was once again told that she was not college material and was turned away. One college counselor told her to “Give up”. Discouraged, but not defeated, Tracy obtained a job as a custodian in the Philadelphia School District, cleaning school buildings, and working in the same hallways of the educational institutions that had many times failed her as a student.

After watching a TV sitcom where a character was diagnosed with Dyslexia, Tracy had an epiphany. She finally had a name to describe what she had been experiencing, “dyslexia”. It was soon after this time that she obtained a formal diagnosis of Dyslexia as an adult. Through the help of tutors and mentors along the way she began to learn, thrive and get accepted into college where she received both an Associate’s Degree and a Bachelor of Science Degree with high honors. (Harcum, A.A, Cabrini, B.S.). Tracy didn’t stop there though. She received her Master’s Degree in Multicultural Education from Eastern University, and at this writing is now pursuing an additional Master’s Degree in Special Education.

As a graduate student, one of the things that help Tracy with her studies is using her text and her Learning Ally audio books together as she reads. She has a recording device with her at all times during her lecture classes. She makes a point to sit up front in the classroom. On the first day of class she introduces herself to her professors and informs them about her dyslexia and how she learns best. Tracy acknowledges that it may be hard at first to be open and honest about one’s learning differences, but she found in her own experience that being honest and open actually helped her more than hurt her. Tracy uses flashcards to learn new information and she’ll sometimes record her own voice reading her cards and then listen to the recording. Tracy also finds it helpful to talk to family members, friends, even her dog and cat about the things that she is learning to help her to retain the information. She recommends that students should make a point to open up about their individual learning styles since “No one knows you better than yourself.” Owning your education and communicating your concerns with your teachers will inform and help them to be in a better position to help you when you need support.

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Tracy credits her success to her faith, and the support from the many mentors, family and friends who entered her life. She turned her challenges into victories, overcoming poverty, and realizing her full academic potential. Her journey is a positive one and Tracy gives back to the community as an accomplished lecturer and advocate for individuals with learning disabilities – especially dyslexia. She is the President and Founder of Vessels of Hope, a mentoring and networking organization for minorities with learning disabilities. She is an in-demand speaker, who presents in a down to earth way as she discusses her rocky early journey of shame and her initial sense of failure, to her later academic achievement and success as an adult. Her story continues to inspire many individuals with dyslexia and other learning disabilities, parents, educators, legislators, civic and business leaders. Her persistence, belief, strong faith and ability to reach out for help, has enabled Tracy to become an agent of change, a true vessel of hope herself for the dyslexic community! I am honored to know and work with her.

Eileen, Tracy, and Susan Raymond at Dyslexia Awareness Event hosted by CDC, Allentown, PA

You can read more about Tracy’s work on the Vessels of Hope website and watch her in the documentary Journey into Dyslexia. Grab a box of tissues. Powerful stuff! Still gets me every time! My son says I don’t cry as much as I did in the beginning of our journey, though. That’s because I can see the light at the end of the tunnel. Thank you, Tracy.

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The hardest part about dyslexia is the loneliness. The same is true if you’re the parent of a dyslexic child. Feeling cut off from your friends, your school or, worse, your child, is tremendously painful.

People tend to focus on the functional challenges: spelling tests, chapter books, standardized tests. But it’s the secret fears about how dyslexia will play out that hold us back the most.

Read the rest of Headstrong Nation founder Ben Foss's most recent post for the NCLD: Dyslexia Insight #4: Seven Secret Fears About Your Dyslexic Child.

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